- Source
- Sociology of Health and Illness
- Published
- 29 Sep 2026
- Authors
- Joseph Donia, L. Marelli
Excerpt from source
ABSTRACT In this article, we trace expectations associated with efforts to promote secondary use of health data in Canada and the European Union. In Canada, we focus on initiatives enabling cross‐jurisdictional data access in a highly devolved federal system with parallel commitments to Indigenous data sovereignty. In the EU, we focus on the European Health Data Space, a new regulatory regime intended to facilitate access to health data for clinical care, research, policymaking and innovation across 27 member states. Drawing on a comparative analysis of policy documents and semi‐structured interviews across nine EU member states and four Canadian provinces and one territory, we find that…
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