Integrating Indigenous Data Sovereignty Principles Into Learning Health Systems: Survey of Canadian PBRLNs and Framework Analysis

Research International Source checked

Source: Annals of Family Medicine
Published: 1 Mar 2026
Authors: Brianne Wood, Barbara Zelek, Roya Daneshemand, M. Kennel, Sophia Myles, Robyn A. O'Loughlin, et al.

Excerpt from source

PURPOSE We sought to describe the current state of data governance principles in Canadian practice-based research and learning networks (PBRLNs) and to examine opportunities and challenges in applying Indigenous data sovereignty frameworks. METHODS We conducted a cross-sectional survey of Canadian PBRLN leaders. Survey results were described using summary statistics and directed content analysis of open-text responses. Indigenous data sovereignty frameworks were identified through a scan of recent publications. We identified and synthesized the main principles presented in each framework and assessed their relevance to PBRLNs. RESULTS Eleven of 15 Canadian PBRLN leaders participated in the…

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