Indigenous people’s perspectives on sharing health data for service delivery purposes: an inquiry using Indigenous methodologies

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Research International Source checked
Source
The Lancet Regional Health - Western Pacific
Published
27 Nov 2025
Authors
Kristie Watego, Morgan Brodhurst-Hill, Cherilda Murray, C. Mangoyana, Alynta Emery, Jayde Woon, et al.

Excerpt from source

Summary Background With healthcare's accelerating digital transformation and expanding data-sharing capabilities, it is essential to uphold Indigenous Data Sovereignty (IDSov)—which affirms Indigenous ownership and authority over health data relating to Indigenous communities. Indigenous Data Governance (IDGov) provides the mechanisms through which IDSov is enacted, ensuring Indigenous Peoples lead decisions about how data are collected, accessed, and used. Our research investigates a local enactment of IDGov, discussing how custodial stewardship is enacted in data-sharing arrangements between an Aboriginal and Torres Strait Islander community-controlled health organisation and a government…

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