Development of a Blockchain-Based Platform to Enable Indigenous Data Sovereignty and Shared Research Participation With Indigenous Communities: Technology Prototyping and Community Engagement Study

Research International Source checked

Source: Journal of Medical Internet Research
Published: 28 Jul 2026
Authors: T. Mackey, Alec J. Calac, Tiana J McMann, Ken Miyachi, Samantha Hurst, Keolu Fox, et al.

Excerpt from source

Abstract Background Historic and ongoing problematic practices regarding the collection, storage, and use of Indigenous health data have led to the need to ensure principles of Indigenous Data Sovereignty (IDS) are followed in research practices and technology development. Objective This project, a partnership between UC San Diego and the Native BioData Consortium (NativeBio), sought to explore the practical application of blockchain technology and its potential to facilitate Indigenous-led research collaboration. Methods This project first undertook purposeful relationship building with NativeBio to form a Community Advisory Board (CAB) for identifying community and technology needs for a…

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